EHDEN

European Health Data and Evidence Network
EHDEN logo

FACTS & FIGURES

Start Date
End Date
Call
IMI2 - Call 12
Grant agreement number
806968

Type of Action: 
RIA (Research and Innovation Action)

Contributions
IMI Funding
14 105 750
EFPIA in kind
14 811 607
Total Cost
28 917 357

Summary

Healthcare data has the potential to transform our understanding of health, disease and outcomes, yet it is currently scattered across multiple institutions and countries, stored in different formats, and subject to different rules. This makes it very difficult to fully utilise this data to benefit patients.  The goal of EHDEN is to make the large-scale analysis of health data in Europe a reality. The project aims to do this by building a federated data network of allowing access to the data of 100 million EU citizens standardised to a common data model. At the heart of the project will be a group of trained, certified small and medium-sized enterprises (SMEs) responsible for transforming the data owned by hospitals to the common data model. The data will remain under complete control of the original data owner, thereby ensuring ethical and local data privacy rules are respected.

EHDEN is part of IMI’s Big Data for Better Outcomes (BD4BO) programme.

Achievements & News

EHDEN to launch first open data partner call
July 2019

IMI’s EHDEN project is launching a call for data custodians to apply for funding to map their health data to the Observational Medical Outcomes Partnership common data model (OMOP CDM).### EHDEN’s ambitious goal is to standardise more than 100 million patient records across Europe from different geographic areas and different data sources. Mapping this data to the OMOP CDM will facilitate their use for a variety of purposes, enhancing and accelerating research and healthcare decision-making for global benefit. In addition to funding, EHDEN data partners will benefit from being part of a thriving academic / medical network; more opportunities to participate in international studies; and improved interoperability and visibility of their data, among other things.

The call is currently in a draft form, and data custodians are invited to review the draft and provide feedback by 15 August. The EHDEN team will review feedback received and open the call for applications from 1 to 15 September.

EHDEN looking for SMEs to take on health data challenge
April 2019

IMI’s EHDEN project is looking for small and medium-sized enterprises (SMEs) to get involved in the project’s efforts to map and convert health data from diverse sources to a common model. The project has launched a pilot call for SMEs who want to get training and certification in this exciting new field. ###EHDEN’s ambitious goal is to standardise 100 million patient records across Europe covering different data source types, including hospitals, registries, and population databases. Transforming this data to the Observational Medical Outcomes Partnership (OMOP) common data model (CDM) is an immense task that EHDEN hopes will be carried out by a community of SMEs. SMEs selected through this pilot call will receive training in this and a certification that will highlight their expertise in this area. ‘We expect that those who receive training and certification through EHDEN will actually go on to perform mappings to help build the network,’ the project writes. ‘We also hope that they will become active members of the community, sharing ideas and possibly helping to develop or improve data mappings and analysis tools.’ According to the project, SMEs will also benefit from access to a larger market, the opportunity to build expertise in and contribute to a relatively new field, and the support of the wider EHDEN community. Finally, certified SMEs will receive invitations to additional training sessions as well as hackathons to improve the open source tools and other events.

  • Details of how to apply can be found on the EHDEN website.
  • Deadline for applications: 1 May 2019

Participants Show participants on map

EFPIA companies
  • Abbvie Inc, North Chicago, Illinois, United States
  • Astrazeneca AB, Södertälje, Sweden
  • Bayer Aktiengesellschaft, Leverkusen, Germany
  • Celgene Management SARL, Couvet, Switzerland
  • Eli Lilly and Company Limited, Basingstoke, United Kingdom
  • Institut De Recherches Internationales Servier, Suresnes, France
  • Janssen Pharmaceutica Nv, Beerse, Belgium
  • Novartis Pharma AG, Basel, Switzerland
  • Pfizer Limited, Sandwich, Kent , United Kingdom
  • Sanofi-Aventis Recherche & Developpement, Chilly Mazarin, France
  • UCB Biopharma SPRL, Brussels, Belgium
Universities, research organisations, public bodies, non-profit groups
  • Erasmus Universitair Medisch Centrum Rotterdam, Rotterdam, Netherlands
  • National Institute For Health And Care Excellence, Manchester, United Kingdom
  • Stiftelsen WHO Collaborating Centre for International Drug Monitoring, Uppsala, Sweden
  • Tartu Ulikool, Tartu, Estonia
  • Universidade De Aveiro, Aveiro, Portugal
  • University of Oxford, Oxford, United Kingdom
Small and medium-sized enterprises (SMEs) and mid-sized companies (<€500 m turnover)
  • International Consortium For Healthoutcomes Measurement LTD, London, United Kingdom
  • Odysseus Data Services Sro, Praha, Czech Republic
  • Synapse Research Management Partners SL, Barcelona, Spain
  • The Hyve BV, Utrecht, Netherlands
Patient organisations
  • European Patients’ Forum (EPF), Brussels, Belgium

CONTACT

Project coordinator
Peter RIJNBEEK
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
p.rijnbeek[at]erasmusmc.nl